Baby B’s Story: Guest Post by Amanda LeFew Our story began shortly after our daughter was born. Early on, she had“issues” with something in my diet (reflux, green diapers, sleep issues, excessive screaming etc.) but we could never pinpoint the problem. She would scream so hard that she would stop breathing, wouldn’t sleep more than 6 [...]

Baby B's Story: Guest Post by Amanda LeFew Our story began shortly after our daughter was born. Early on, she had“issues” with something in my diet (reflux, green diapers, sleep issues, excessive screaming etc.) but we could never pinpoint the problem. She would scream so hard that she would stop breathing, wouldn't sleep more than 6 [...]

Ginny’s Journey On May 15, 2010 I went to the grocery store after feeding my 6 month old daughter rice cereal and putting her to sleep. I came back a short while later to find her grey, cold, unresponsive, and vomiting repeatedly and profusely as my husband held her in his arms. We rushed to [...]

Ginny's Journey On May 15, 2010 I went to the grocery store after feeding my 6 month old daughter rice cereal and putting her to sleep. I came back a short while later to find her grey, cold, unresponsive, and vomiting repeatedly and profusely as my husband held her in his arms. We rushed to [...]

_ Guest Post by Amanda Bofferding  from Our Slice of FPIES Today, February 29, 2012, is Rare Disease Day, sponsored by the National Organization for Rare Disorders (NORD).  In honor of this day, I’d like to share what it’s like to be the mom of a child with a rare disorder. My son, Matthew, has Food [...]

_ Guest Post by Amanda Bofferding  from Our Slice of FPIES Today, February 29, 2012, is Rare Disease Day, sponsored by the National Organization for Rare Disorders (NORD).  In honor of this day, I'd like to share what it's like to be the mom of a child with a rare disorder. My son, Matthew, has Food [...]

Guest Post by Jen from www.chapmanbaby.blogspot.com Hi! My name is Jen, and I’m the parent of a child who used to have something called FPIES. FPIES stands for Food Protein-Induced Enterocolitis Syndrome and is pronounced “F” then “PIES.” FPIES is a rare food allergy-like syndrome that causes inflammation of the bowel and small intestines.  The most [...]

Guest Post by Jen from www.chapmanbaby.blogspot.com Hi! My name is Jen, and I'm the parent of a child who used to have something called FPIES. FPIES stands for Food Protein-Induced Enterocolitis Syndrome and is pronounced "F" then "PIES." FPIES is a rare food allergy-like syndrome that causes inflammation of the bowel and small intestines.  The most [...]

Guest Post by Joy Meyer Little Man Sam and FPIES Samuel is 2 1/2 old and was diagnosed with FPIES at 11mo; although he had chronic illness for months prior to the diagnosis. Samuel is our 4th child, 2 of our other boys had milk protein intolerances so when Samuel started to show sensitivity to [...]

Guest Post by Joy Meyer Little Man Sam and FPIES Samuel is 2 1/2 old and was diagnosed with FPIES at 11mo; although he had chronic illness for months prior to the diagnosis. Samuel is our 4th child, 2 of our other boys had milk protein intolerances so when Samuel started to show sensitivity to [...]

My name is Keri. I am a Mom, a Wife and a survivor. On this day to bring awareness of Rare Disorders, I am sharing my rare disorder story in hopes of bringing light to the world of Factor V Leiden Mutation. In June of 2004, I was happily married and we were expecting our [...]

My name is Keri. I am a Mom, a Wife and a survivor. On this day to bring awareness of Rare Disorders, I am sharing my rare disorder story in hopes of bringing light to the world of Factor V Leiden Mutation. In June of 2004, I was happily married and we were expecting our [...]